The boy named Mahindra Ahirwar, 13-year-old from a small village in Madhya Pradesh, Central India born with a peculiar condition known as congenital myopathy.
Congenital myopathy refers to infants’ muscle disorders. In Mahindra’s case, his neck muscles were so weak that it could not hold his head like normal people but hung at a 180 degree angle.
The boy’s condition kept him in constant pain and he was entirely dependent on his family and friends for care. Mahindra’s parents, Mukesh and Sumitra, actually wished for his death as a way to end their son’s agony.
They took Mahindra to over 50 doctors throughout India. In those years no one was able to help. The doctors suggested any sort of operation would only kill the child.
But as fate would have it, despite being a stranger and thousand miles away, Julie Jones, a mother-of-two from Liverpool read about Mahindra’s condition and set up a crowd funding campaign, in less than a month, Ms. Jones raised £12,000 for the boy’s treatment.
Soon enough, the world renown spinal surgeon, Dr Rajagopalan Krishnan at Apollo Hospital in Delhi conducted the corrective surgery where he removed the disks from his neck and replaced those with a bone graft from his pelvis.
The extraordinary condition of Mahindra was also aired on Television across India, Mahindra’s family and Ms. Jones met at the hospital and tears came flowed down.
After spent two weeks at the hospital, the boy acquired an electric wheelchair donated anonymously. In six months he has to wear a neck brace and needs regular check-ups with his doctor.
The boy excitedly waited by his family and neighborhoods.